vo of the Hutchinson-Gilford Progeria Syndrome: iejos

vo of the Hutchinson-Gilford Progeria Syndrome: iejos

Progeria: The Hutchinson-Gilford syndrome or Old Children

Progeria, also known as Hutchinson-Gilford syndrome is a rare, fatal genetic condition characterized by the appearance of premature and accelerated aging in children.

Although 52 known cases of children with the disease in 29 countries around the world, scientists estimated that there are approximately 150 affected statistics that have not yet been identified.

Therefore, the Foundation for Progeria Research (PRF, for short) announced the launch of the international awareness of the disease "find the other 150", to be held in collaboration with GLOBALHealthPR a international group specializing in health communication.

This campaign aims to find children with Progeria and have not yet been identified in North America and South America, Europe, Russia, Asia and Africa through awareness and information activities on disease targeting the general public and communities medical.

Efforts to find those children will enable the PRF to offer medical services and specialized care they need.

"Our goal is to find these children as quickly as possible so we can provide for their families and caregivers the latest information on Progeria research and possible treatments of the disease. We are very excited to launch this campaign with GLOBALHealthPR because its global reach will help us achieve dissemination and awareness of the disease worldwide, "said Audrey Gordon, President and CEO of PRF.

The Foundation for Progeria Research (PRF) was established in 1999 to try to find the cause, treatment and cure for Progeria, a premature aging disease that causes the death of children who suffer from heart attacks or stroke at age 13 on average.

In the past ten years, research carried out in conjunction with the PRF has identified the gene that causes Progeria and has uncovered a possible treatment for children who suffer.

PRF launched the first clinical trial for Progeria, which is currently underway at Children's Hospital in Boston.

For more information about Progeria and what you can do to help these children, please visit www.progeriaresearch.org.

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